Madison

Madison 
Cystic Fibrosis
SSM Health Cardinal Glennon Children’s Hospital

When you first meet Madison, you wouldn’t know, she spends three hours every day doing treatments for Cystic Fibrosis (CF), takes over 30 pills daily and gets fed through a feeding tube 5 nights a week.

Diagnosed at a month old, Madison has spent at least two months in the hospital every year. Struggling with a life-threatening illness, Madison is an advocate for CF and speaks openly about the struggles she faces daily. With new medications, Madison is doing better, but she knows that even more can be done to help people with CF live longer.

While she probably doesn’t feel good most days, she doesn’t let that stop her. She hasn’t let CF prevent her from doing all the things she loves like swimming, soccer, and basketball. Madison is also a huge Hamilton fan and dreams of one day going to see the show live on Broadway!  

How Donations Help Madison

Spending time in the hospital is fun for anyone, but for a CF patient who can’t leave their room, spending 30 days in the same room is hard. Funding in part, to the Shining Star School from Children’s Miracle Network Hospitals, helps Madison maintain normalcy and helps her keep up with her school work during her stays at Cardinal Glennon.